April 10, 2022

Hey, Mom. How are you? Yesterday was mine and Cliff’s anniversary. We’ve been together for 17 years. And we got to celebrate by still being here in the hospital. Today is our 11th day here. I’m so ready to leave. Ramsey is so ready to leave. But she can’t walk unassisted, can’t hold her head up, can’t make it to the bathroom. She has lost so much because of this event. And some days I worry she has also lost hope.

We do see some improvement though. She is really trying to walk on her own. Yesterday, Jennifer came back up to help out. When she got here, we all went to the cafeteria to get some lunch. She stayed with Ramsey while Cliff and I made salads from the bar. When I was working on paying for the lunches, I saw that Ramsey was out of her wheelchair, and Jennifer was struggling to get her on a dining chair. I rushed over to ask why Jennifer took her out of the chair, and she said that Ramsey has undone the seatbelt and started getting up to get in the chair herself. She wants to do things as normal, and it’s good to see her being a little independent.

Of course, there are setbacks too. I woke up this morning to Ramsey crying. I got up to check on her, and she had fallen out of bed. The bed guard was down. I don’t know who left it down, but the nurse came in and exclaimed “I just checked on you.” If she just checked, she should have seen that the guard was down and put it up to prevent this from happening. At least Ramsey was able to help us get her back standing so we could get her back in the bed.

Time has no meaning here anymore. I’m vaguely aware of the date, and I can look at my phone or watch for the time, but it doesn’t seem to matter. It’s like we’re in some sort of time vortex. Maybe things will get better when Ramsey goes to rehab next week. She will get 3 hours of various therapies when that happens, so we’re hoping to see massive improvement. We need to go home. I need for her to feel a little bit normal before the next surgery happens.

Beads of Courage = making a necklace from beads she’s earned from all the stuff she’s been through
Just a small fraction of the beads she’s earned
I’ll take any smile I can get.
I don’t think she likes being confined to a wheelchair.
She’s gotten a lot of new stuffed friends while here.

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